International ITP Alliance Members Attend ITP Conference 2018 in Cleveland, OH

Global ITP advocacy partners from Denmark, Finland, Netherlands, and New Zealand attended the 18th ITP Conference 2018 for the first time as the International ITP Alliance. The three-day event and scholarship opportunity presented by the Platelet Disorder Support Association (PDSA), offered attendees information on the latest advancements in the diagnosis and treatment of ITP, small group sessions where patients shared their stories, an educational dinner program, a fun-filled hike and seek event and PDSA’s 20th Anniversary celebration at the legendary Rock and Roll Hall of Fame.

Global advocacy partners attend ITP Conference for the first time as the International ITP Alliance. (L-R) Davy Charlottenfeld (Denmark), Wendy Grace Allen and daughter Azaria (New Zealand), Marjo Lindberg (Finland), Karin de Boer (Netherlands) with PDSA Executive Director, Caroline Kruse.

The International ITP Alliance Team (L-R) Wendy Grace Allen (New Zealand), Marjo Lindberg (Finland), and Karin de Boer (Netherlands) tested their ITP knowledge against Team USA in the Jeopardy Challenge.

(L-R) Marjo Lindberg (Finland), and Karin de Boer (Netherlands) rock the purple in the photo booth.

International ITP Alliance members enjoy the sights with PDSA staff and volunteers.

ITP Alliance at the 23rd Congress of European Hematology Association

International ITP Alliance members from Denmark, Italy, Sweden and the United States participated in the 23rd Congress of the European Hematology Association (EHA) in Stockholm, Sweden on June 14-17, 2018. It was the largest EHA Congress held to date with more than 11,000 participants from around the world. The program covered every subspecialty in hematology and attendees networked with worldwide experts. This year’s educational and scientific program highlighted state-of-the-art clinical practice, the latest findings in hematology research and other interesting sessions, provided satellite programs and an exhibition organized by pharmaceutical companies.

Monika Westerberg (L), president of the ITP patient group in Sweden and PDSA Executive Director Caroline Kruse (R) answer questions and pass out educational materials at the patient advocacy booth at the 23rd EHA Congress.

PDSA Research Coordinator Alexandra Kruse (L) and Barbara Lovrencic (R), head of the ITP patient group in Italy, are authors on the poster abstract presented at the 23rd EHA Congress, “The burden of disease and impact of Immune Thrombocytopenia (ITP) on patient quality of life and productivity: Results from the ITP World Impact Survey (I-WISh).”