Member Patient Support Organizations

Organizations are listed in alphabetical order by country. Please note that some countries have more than one patient support organization.

/Argentina

PTI - Grupo de Apoyo para Pacientes

Contact:
Romina Morales

/Austria
Kompetenz - Team ITP / Morbus Werlhof, Austria
/Brazil

ABRALE Associação Brasileira de Linfoma e Leucemia

Contact:
Carolina Cohen

/Canada

Platelet Disorder Support Association

Contact:
Nancy Potthast

/Chile

Púrpura Trombocitopénica Idiopática Chile

Contact:
Camila Quezada Vivar

/China

ITP Home

Contact:
itphome@qq.com

/Denmark

Danmarks Blöderförening (Danish Haemophilia Society)

Contact:
dbf@bloderforeningen.dk

/Denmark

ITP Support Danmark

Contact:
Davy Alan Charlottenfeld

/Egypt

Shefaa ITP Patient Group

Contact:
Dr. Doaa Mohamed El Demerdash

/France

Association AMAPTI

Contacts:
amapti@orange.fr / contact@amapti.org

/Germany

ITP SHG Giessen

Contact:
Gabriele Arnold

/Germany

Kompetenz –Team ITP / Morbus Werlhof Germany

Morbus-Werlhof-Selbsthilfegruppe: YouTube

/Hungary

Rare Diseases Hungary

Contact:
Gabor Pogany

/India

India ITP Support

Contact:
Ajoy Roy

/Liechtenstein

Kompetenz – Team ITP / Morbus Werlhof Liechtenstein

/Mexico

Purpura Trombocitopenica Idiopatica

/Netherlands

ITP Patiëntenvereniging Nederland

Contact:
Karin de Boer

/New%20Zealand

Platelet Disorder Support Association

Contact:
Nancy Potthast

/Norway

ITP Support Norge

Contacts:
itpnorge@gmail.com

/Poland

Małopłytkowość samoistna, Polska

Contact:
maloplytkowosc.polska@gmail.com

/Romania

PTI Romania

Contact:
ptiromania@gmail.com

/Slovakia

združenie pacientov s hematologickými malignitami

Facebook Page

Contact:
Katarina Fedorova, Chairperson

/Sweden

Blödarsjuka Sverige

Contact:
Monika Westerberg

/Switzerland

Kompetenz – Team ITP / Morbus Werlhof Switzerland

/United%20Kingdom

The ITP Support Association

Contact:
info@itpsupport.org.uk

/United%20States%20of%20America

Platelet Disorder Support Association

Contact:
pdsa@pdsa.org