The intercontinental partnership of ITP patient support organizations committed to education, awareness and establishing a global voice for immune thrombocytopenia patients.

GLOBAL ITP NEWS...

• Chronic illness is a lonely thing "For the past year I religiously text my husband, Shea, every Friday afternoon. There’s nothing unusual in that, but the weekly message contains just a number, no words. Triple digits and we’re happy; single digits…
• Lessons from vaccine-induced immune thrombotic thrombocytopenia Adenoviral vector vaccines are effective against SARS-CoV-2 but have been associated with a rare side effect termed vaccine-induced immune thrombotic thrombocytopenia (VITT). Here, we discuss our understanding of how vaccine-induced antibodies to platelet factor 4…
• SARS-CoV-2 Vaccination and Immune Thrombocytopenia in de novo and pre-existing ITP patients Key Points SARS-CoV-2 vaccines are generally safe in patients with pre-existing ITP but thrombocytopenia exacerbation may occur and requires monitoring Splenectomy and past use of 5 or more therapies predict higher…
• Mum's horror condition that put her at risk of fatal bleeding while pregnant “When I was first diagnosed, they said my platelet levels would continue to drop and there was a risk of internal bleeding which can ultimately be life-threatening,” she…
• Boy diagnosed with bleeding disorder after mum notices red dots on his ear “When Hudson was six months old, he picked up a few infections, but our GP wasn’t concerned as he always bounced back. But a month later, I noticed…

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Global ITP Awareness Week is Sept. 25-29!

This specially designated week calls for individuals around the world to join together to promote public awareness of immune thrombocytopenia (ITP). The theme for this year’s Global ITP Awareness Week is Increasing Awareness to Improve Outcomes and we thank you in advance for helping us empower the global ITP patient community!

#ImprovingOutcomesForITP

Mark your calendar and prepare to help us bring attention and understanding to this rare bleeding disorder throughout the week – and be sure to help us make a splash on Sport Purple for Platelets Day on September 29th!

MORE INFO

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Webinar - Tuesday, Sept. 26, 2023

Your voice matters: navigating immune thrombocytopenia (ITP) healthcare decisions through Shared Decision-Making
A webinar for people living with ITP and their caregivers

More Info

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