Australia & New Zealand Unite for Global Awareness
ITP Awareness Week is lighting up Australia and New Zealand with over 150 landmarks turning purple as part of #LightUp4ITP and the global #PaintThePlanetPurple campaign. Locals can join the month-long ITP Scavenger Hunt, wear exclusive Awareness Week merch from our Redbubble store, and take part in I sporT purPle for Platelets Day on Friday, 26 September. It’s a powerful week of connection, colour, and community support for those living with ITP.
Brazil's Purple September 2025: ITP Awareness Initiatives
To mark International ITP Awareness Week, which runs from September 22–28, 2025, the Brazilian ITP Association, PTI Brasil, will lead several key initiatives to raise awareness of immune thrombocytopenia.
- On September 21–22, the Federal Senate in Brasília will be illuminated in purple to bring national visibility to ITP and the patients it affects.
- A Public Hearing will be held at the Chamber of Deputies in Brasília on September 24. Speeches will be given to explain the demands of ITP patients in the country.
- The 1st National PTI Conference will take place on September 27, featuring eight of Brazil's leading experts. Up to 50 patients can attend in person, with up to 500 participants attending online.
- A dedicated social media campaign will run throughout the month with the theme, "It’s not just purple, it’s PTI—respect my struggle!". The campaign will highlight patient stories and the challenges of living with ITP.
- Instagram Live sessions will also be held with hematologists and other specialists to provide accessible information on ITP, treatment options, and mental health.
Through these initiatives, the Brazilian ITP Association aims to ensure that the voices of people living with ITP are heard and recognized both nationally and globally. You can find more details about these events on the official PTI Brasil website.
👉 Discover more about these initiatives on official PTI Brasil website.
Educational and Playful Universe for Children with ITP Launched in Denmark
On International ITP Awareness Day 2025, the Danish Hemophilia Society is proud to unveil a new playful and educational patient universe designed specifically for children with Immune Thrombocytopenia (ITP) and their families.
Families often struggle to find a shared language to understand and discuss what happens when a child is diagnosed with ITP. This innovative patient education material aims to bridge that gap, giving the entire family a common understanding of the condition – with the help of the new mascot, 'Blop', and his friends.
The educational universe includes two books — one for younger children and one for older children — alongside digital resources and short animated films.
Through characters such as Silje, Anton, and Ida, children learn about what happens inside the body when there are too few 'bloppers' (platelets).
Published by the Danish Hemophilia Society and produced by Caretoons, the material draws inspiration from families affected by ITP, who generously shared their experiences with the authors. Medical expertise was provided by Dr. Mimi Kjærsgaard from the Department of Pediatrics and Adolescents at Rigshospitalet, Denmark. The project is supported by Sundhedsdonationer and Helsefonden.
This initiative marks a significant step in making ITP education accessible, engaging, and supportive for children and their families, combining playful storytelling with essential medical knowledge.
France - Toulouse Hosts a Purple September Patient Event Ahead of International ITP Awareness Week
As part of Purple September, and just days before International ITP Awareness Week (22–28 September 2025), a special Patient Evening around ITP will take place in Toulouse on 19 September 2025.
Organized by Professor Guillaume Moulis with the support of the O'Cyto association and AMAPTI, the event will be held at the Hôtel Palladia in a hybrid format, with nearly 100 participants already registered. The evening will feature talks by medical experts, updates from patient associations, and an open roundtable for discussion. A buffet dinner will be offered to those attending in person.
📍 Date & Time: 19 September 2025, 19:00 – 21:30
📍 Location: Hôtel Palladia, Toulouse (hybrid event)
This initiative provides an important moment of exchange and awareness in anticipation of International ITP Awareness Week, strengthening ties between patients, associations, and healthcare professionals worldwide.
👉 To learn more, please visit the O'Cyto website or download the program!
AIPIT promotes the Global #LightUp4ITP Campaign 2025 in Italy
AIPIT is taking part in the international #LightUp4ITP campaign and promotes ITP Awareness week in Italy.
For the first time in Italy, buildings and public landmarks will be illuminated in purple, joining an international initiative to raise awareness of Immune Thrombocytopenia (ITP) and demonstrate support for patients and their families.
Highlights include:
- Campi Bisenzio (FI) – Palazzo Benini, September 22
- Potenza – Palazzo di Città, September 26 - 27
- Dolzago (LC) – Studio Conti Milanesi, September 26
The initiative also involves the healthcare community, with more than ten hospitals and university centers across Italy displaying campaign posters, while some teams wear purple to highlight their support for the ITP community. Among them, Dr. Carrai and her team in Florence proudly shared their photo!
Throughout the week, AIPIT will promote a dedicated social media campaign, inviting everyone to participate by wearing purple, sharing stories online with hashtags such as #LightUp4ITP and #SettimanaMondialeITP, and helping to "paint the planet purple."
Discover more on aipit.com.
ITP Awareness Week 2025 – Activities in the Netherlands
The Dutch ITP patient organization (ITP Patiëntenvereniging Nederland) is actively contributing to International ITP Awareness Week 2025 with a variety of initiatives aimed at increasing awareness and supporting patients.
Throughout September, the association is enhancing its presence on social media (Facebook, Instagram, and LinkedIn) and has created a dedicated campaign page in both Dutch and English.
Two special events are being organized:
September 20 – a lunch meeting for children with ITP and their parents, offering the chance to connect and share experiences.
💜 This afternoon we had a wonderful lunch for children with ITP and their families!
For many kids, it was the very first time meeting others with ITP. They had so much fun playing together at Speelparadijs Pannenkoekenhuis Voorst and, of course, enjoying delicious pancakes 🥞✨.
Parents also valued the chance to connect and share experiences. Two board members of the Dutch ITP patient Association were present to provide information and answer questions.
It was a truly successful afternoon and we’re already looking forward to next year! 💜
#ITPAwareness #StrongerTogether #Global4ITP
September 23 – a webinar for young people with ITP, focusing on participation in society while living with a chronic illness. The session will provide practical advice and guidance on questions such as when and how to talk about a chronic condition in professional or educational settings.
As in other Alliance countries, ITP Patiëntenvereniging Nederland is also encouraging its members and supporters to take part in the awareness campaign by sharing photos on social media dressed in purple and holding awareness signs, as well as by inviting cities to illuminate their landmarks in purple.
In addition, the organization is sharing valuable information about ITP and the importance of Shared Decision Making.
PDSA - Light Up for ITP Campaign in USA and Canada
Our signature initiative, Light Up for ITP, invites cities worldwide to illuminate landmarks in purple—symbolizing hope and solidarity with the ITP community.
This year, iconic sites such as the CN Tower in Toronto and the Mid-Hudson Bridge in New York will glow purple on September 26th, raising visibility for entire ITP community.
Social Media Toolkit
To support our members and advocates in spreading awareness online, we've launched the 2025 ITP Awareness Month Social Media Toolkit, featuring:
- Downloadable graphics and educational content
- Suggested hashtags like #LightUp4ITP and #Purple4Platelets
- Story prompts to share personal experiences and connect with others
- Tagging guidance to engage with PDSA across platforms
Member Engagement
This September, we encourage members to actively participate by sharing their journeys, hosting fundraising events, and joining Global ITP Awareness Week (September 22–28).
Pump It Up for Platelets! Events
PDSA is hosting more than five Pump It Up for Platelets! walk/runs across the USA, as well as additional virtual events throughout the month. These community-driven gatherings bring patients, families, and advocates together to celebrate resilience, share stories, and raise funds for patient-centered programs.
Canadian Regional Meeting on ITP
We are proud to host the Canadian Regional Meeting on ITP on September 28th, a forum connecting patients and healthcare professionals. Attendees will benefit from expert presentations, patient panels, and opportunities to engage with the latest research and resources.
PDSA remains committed to supporting patients, caregivers, and healthcare professionals year-round. Learn more and get involved at pdsa.org/itp-awareness-month.
